When Patients Know Best

Chronic Pain

This is just a short blog to recommend an episode of This American Life, “Something Only I Can See.”

It’s about a woman who first is convinced her family has a rare genetic condition.

And who then is convinced she has a second one.

The doctors don’t believe her either time.

I’m lucky, at this point in my life, to has a GP who believes me. I have lots of rare things, and I’m that person who has the rare side effect–the one that isn’t listed in the commercial.

When I go to the ER for abdominal migraines, I have to educate everyone about it. Since I’m never asking for pain killers, they don’t fight me. God help me if I did need some to fight this, though.

This story reminded me to keep explaining and to keep pushing. Lightening does strike twice for some of us.

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